Int J Stomatol

Int J Stomatol ›› 2019, Vol. 46 ›› Issue (3): 297-301.doi: 10.7518/gjkq.2019008

• Original Articles • Previous Articles     Next Articles

Family resilience for families of children with cleft lip and palate and discussion on its influencing factors

Dan Liu1,Bochun Mao2,Ruyan Luo1,Ke Cui1,Bing Shi2,Caixia Gong2()   

  1. 1.Dept. of Sociology and Psychology, School of Public Administration, Sichuan University, Chengdu 610065, China
    2.State Key Laboratory of Oral Diseases & National Clinical Research Center for Oral Diseases & Dept. of Cleft Lip and Palate Surgery, West China Hospital of Stomatology, Sichuan University, Chengdu 610041, China
  • Received:2018-09-22 Revised:2019-01-19 Online:2019-05-01 Published:2019-06-05
  • Contact: Caixia Gong E-mail:gongcaixia01@163.com
  • Supported by:
    This study was supported by Scientific Research Project of Health Commission of Sichuan Province(17PJ342)

RichHTML

17

PDF (PC)

323

Abstract:

Objective This study aims to provide a new perspective and basis for psychological support for families of children with cleft lip and palate (CLP) by examining the family resilience level and demographic factors that affect family resilience. Methods A total of 113 parents of children with cleft lip and palate were selected as the experimental group from West China Stomatology Hospital. A total of 160 parents of non-CLP children were selected from a school in Chengdu as the control group. A self-made questionnaire was used to assess the basic information of subjects. Family resilience scale was conducted to assess the scores of family resilience and all dimensions. Results 1) The experimental group had a significantly lower score than the control group (P<0.05) in the total score of family resilience, family communication and problem solving, and ability to find meaning in adversity and maintain a positive outlook. 2) In the cleft lip and palate group, there were significant differences between the total score (the overall level of family resistance) and the parents’ gender, main place of residence, primary caregiver, and the severity of illness (P<0.05).Conclusion The level of resilience of families with CLP children is lower than that of families with non-CLP children. The total score of family resilience of father is lower than that of the mother. Families in which the parents are the primary caregivers showed higher family resilience. Families living in cities have higher total score of family resilience than families living in towns, and families living in villages had the lowest resilience.

Key words: cleft lip and palate, family with cleft lip and palate children, family resilience

CLC Number: 

  • R782.2

TrendMD: 

Tab 1

Comparison of the scores of FARS-C between the experimental group and the control group"

变量 试验组 对照组 t值 P值
总分 158.41±11.81 165.78±18.78 26.18 0.000
家庭灵性 2.08±0.58 2.07±0.62 0.812 0.879
利用社会和经济资源 2.80±0.41 2.83±0.43 0.378 0.592
家庭联结 2.83±0.34 2.80±0.32 0.657 0.373
家庭沟通与问题解决 3.04±0.27 3.14±0.41 29.440 0.039
赋予逆境的能力 3.24±0.74 3.41±0.47 0.319 0.027
持有积极看法 3.12±0.37 3.32±0.46 16.471 0.000

Tab 2

Epidemic distribution of main influential factors of the experimental group"

项目 分类 n 得分 t值 F值 P值
家长性别 男 33 153.41±11.07 2.71 - 0.007
女 74 160.61±13.34
宗教信仰 有 20 162.65±14.41 1.71 - 0.040
无 87 157.65±11.08
主要居住地 农村 56 156.87±11.32 - 12.690 0.037
乡镇 26 157.50±9.97
城市 25 162.72±13.87
主要抚养人 父母双方 46 159.15±5.66 - 12.390 0.020
父/母一方 17 158.39±12.08
（外）祖父/（外）祖母 44 156.94±12.08
畸形严重程度 唇裂 6 159.38±11.56 - 17.113 0.001
腭裂 5 150.47±4.68
CLP 96 149.33±12.40
[1] Sixbey MT . Development of the family resilience assessment scale to identify family resilience constructs[D]. Gainesville: University of Florida, 2005.
[2] 李玉丽 . 父母肢体残疾的青少年创伤后成长与家庭弹性的关系及机制[D]. 济南: 山东大学, 2016.
Li YL . Posttraumatic growth and family resilience in adolescents with parental physical disablities[D]. Jinan: Shandong University, 2016.
[3] Walsh F . Family resilience: a developmental systems framework[J]. Eur J Dev Psychol, 2016,13(3):313-324.
doi: 10.1080/17405629.2016.1154035
[4] Walsh F . A family resilience framework: innovative practice applications[J]. Fam Relat, 2002,51(2):130-137.
doi: 10.1111/fare.2002.51.issue-2
[5] 芦恒, 黄晓婷 . 家庭抗逆力视角下癌症患者家庭的医务社会工作介入研究[J]. 医学与社会, 2016,29(2):80-82.
Lu H, Huang XT . Study on the medical social work intervention for cancer patient family based family resilience[J]. Med Soc, 2016,29(2):80-82.
[6] Hunt O, Burden D, Hepper P , et al. The psychosocial effects of cleft lip and palate: a systematic review[J]. Eur J Orthod, 2005,27(3):274-285.
doi: 10.1093/ejo/cji004 pmid: 15947228
[7] 周猛, 刘宗响, 王鹏来 , 等. 唇腭裂儿童生活质量及其影响因素分析[J]. 上海口腔医学, 2016,25(1):63-67.
Zhou M, Liu ZX, Wang PL , et al. Quality of life and its influential factors of children and adolescents with congenital cleft lip and palate[J]. Shanghai J Stomatol, 2016,25(1):63-67.
[8] 穆玥, 陈仁吉, 杨凤池 , 等. 成年唇腭裂患者社会生活状态的初步探讨[J]. 北京口腔医学, 2013,21(4):212-214.
doi: 10.3969/j.issn.1006-673X.2013.04.010
Mu Y, Chen RJ, Yang FC , et al. Preliminary study of social-life condition of adult patients with cleft lip and/or palate[J]. Beijing J Stomatol, 2013,21(4):212-214.
doi: 10.3969/j.issn.1006-673X.2013.04.010
[9] 龚彩霞, 熊茂婧, 吴敏 . 唇腭裂患者及其家长的心理特点与心理护理[J]. 国际口腔医学杂志, 2010,37(4):413-416.
doi: 10.3969/j.issn.1673-5749.2010.04.011
Gong CX, Xiong MJ, Wu M . Psychological characteristics and nursing of cleft lip and palate children and their parents[J]. Int J Somatol, 2010,37(4):413-416.
doi: 10.3969/j.issn.1673-5749.2010.04.011
[10] Mani M, Reiser E, Andlin-Sobocki A , et al. Factors related to quality of life and satisfaction with nasal appearance in patients treated for unilateral cleft lip and palate[J]. Cleft Palate Craniofac J, 2013,50(4):432-439.
doi: 10.1597/11-035 pmid: 22035039
[1] Chen Zhuo,Shi Bing,Li Jingtao.. Characterizing the nasal growth among patients with cleft lip and palate [J]. Int J Stomatol, 2023, 50(3): 279-286.
[2] Pei Ling,Zeng Ni,Yang Chao,Wang Yan,He Miao,Luo Qiang,Shi Bing. Analgesic effects of local anesthesia after cleft lip and palate repair [J]. Int J Stomatol, 2022, 49(6): 657-662.
[3] Huang Yixuan,Shi Bing,Li Jingtao.. Research progress on nasal airway among patients with cleft lip and palate [J]. Int J Stomatol, 2022, 49(4): 453-461.
[4] Zhang Qi,Fan Cunhui,Yang Qian,Li Ran,Xu Xiaolin,Ding Wei,Wang Wenhui,Yang Caixiu. Dental arch morphology between patients with unilateral complete cleft lip and palate and patients with non-cleft lip and palate with a class Ⅲ skeletal relationship in mixed dentition stage: a comparative study [J]. Int J Stomatol, 2022, 49(2): 144-152.
[5] Sun Jialin,Lin Yansong,Shi Bing,Jia Zhonglin. Research progress on genetics of five common syndromic subtypes of cleft lip and palate [J]. Int J Stomatol, 2021, 48(6): 718-724.
[6] Wu Min,Shi Bing. Research progress on breastfeeding infants with cleft lip and palate [J]. Int J Stomatol, 2021, 48(3): 269-273.
[7] Song Shaohua,Mo Shuixue. Orthodontic treatment in sequential treatment of cleft lip and palate [J]. Int J Stomatol, 2019, 46(6): 740-744.
[8] Deng Chengdan,Shi Bing,Li Yang. Research progress on the brain structure and function of patients with cleft lip and palate [J]. Int J Stomatol, 2019, 46(5): 617-620.
[9] Yuhao Liu,Na Bai,Menglong Cheng,Bing Shi,Zhihui Li,Caixia Gong. Effect of video modeling on the perioperative psychological status of parents of children with cleft lip and palate [J]. Inter J Stomatol, 2019, 46(1): 26-29.
[10] Pu Hongling, Chen Lixian, Gong Caixia, Wu Min, Shi Bing. Changes of blood biochemical indexes in 0-6 years old children with cleft lip and palate [J]. Inter J Stomatol, 2017, 44(4): 385-389.
[11] Pan Yingdan, Liu Yiqin, Xiao Liwei. Orthodontic treatment of patients with cleft lip and palate in mixed dentition [J]. Inter J Stomatol, 2017, 44(4): 380-384.
[12] Chen Zhiyi, Chen Zhenqi. Dental anomalies of anterior permanent teeth in patients with cleft lip and palate [J]. Inter J Stomatol, 2017, 44(4): 393-397.
[13] Gong Caixia, Ha Pin, Shi Bing. Psychological nurse care in the treatment of cleft lip and palate [J]. Inter J Stomatol, 2017, 44(4): 377-379.
[14] Liu Yun, Li Zhenzhen, Yang Xudong. Effects of intranasal dexmedetomidine for children undergoing cleft lip and palate repair surgery [J]. Inter J Stomatol, 2016, 43(4): 401-405.
[15] Liu Xiyang, Chen Zhenqi. Research progress on cranial base morphology of patients with cleft lip and palate [J]. Inter J Stomatol, 2015, 42(5): 525-527.
Viewed
Full text


Abstract

Cited
  Shared   
  Discussed   
[1] . [J]. Foreign Med Sci: Stomatol, 1999, 26(06): .
[2] . [J]. Foreign Med Sci: Stomatol, 1999, 26(06): .
[3] . [J]. Foreign Med Sci: Stomatol, 1999, 26(05): .
[4] . [J]. Foreign Med Sci: Stomatol, 1999, 26(05): .
[5] . [J]. Foreign Med Sci: Stomatol, 1999, 26(05): .
[6] . [J]. Foreign Med Sci: Stomatol, 1999, 26(04): .
[7] . [J]. Foreign Med Sci: Stomatol, 1999, 26(04): .
[8] . [J]. Foreign Med Sci: Stomatol, 1999, 26(04): .
[9] . [J]. Foreign Med Sci: Stomatol, 1999, 26(04): .
[10] . [J]. Foreign Med Sci: Stomatol, 1999, 26(04): .