国际口腔医学杂志 ›› 2019, Vol. 46 ›› Issue (3): 297-301.doi: 10.7518/gjkq.2019008

• 论著 • 上一篇    下一篇

唇腭裂患者家庭抗逆力及其影响因素

刘丹1,毛渤淳2,雒如燕1,崔珂1,石冰2,龚彩霞2()   

  1. 1.四川大学公共管理学院社会学与心理学系 成都 610065
    2.口腔疾病研究国家重点实验室 国家口腔疾病临床医学研究中心四川大学华西口腔医院唇腭裂外科 成都 610041
  • 收稿日期:2018-09-22 修回日期:2019-01-19 出版日期:2019-05-01 发布日期:2019-06-05
  • 通讯作者: 龚彩霞
  • 作者简介:刘丹,学士,Email:2015141092021@stu.scu.edu.cn
  • 基金资助:
    四川省卫生和计划生育委员会科研课题(17PJ342)

Family resilience for families of children with cleft lip and palate and discussion on its influencing factors

Dan Liu1,Bochun Mao2,Ruyan Luo1,Ke Cui1,Bing Shi2,Caixia Gong2()   

  1. 1.Dept. of Sociology and Psychology, School of Public Administration, Sichuan University, Chengdu 610065, China
    2.State Key Laboratory of Oral Diseases & National Clinical Research Center for Oral Diseases & Dept. of Cleft Lip and Palate Surgery, West China Hospital of Stomatology, Sichuan University, Chengdu 610041, China
  • Received:2018-09-22 Revised:2019-01-19 Online:2019-05-01 Published:2019-06-05
  • Contact: Caixia Gong
  • Supported by:
    This study was supported by Scientific Research Project of Health Commission of Sichuan Province(17PJ342)

摘要:

目的 通过探讨唇腭裂患者的家庭抗逆力水平及其影响的相关人口学因素,为唇腭裂家庭进行心理支持提供新的视角与干预依据。方法 选取113名唇腭裂患儿的父母作为试验组,同期随机选取160名非唇腭裂患者的父母作为对照组。应用自制基本情况调查表、家庭抗逆力量表进行问卷调查,统计家庭抗逆力各维度得分并对相关人口学因素进行相关性分析。结果 1)试验组的家庭抗逆力总分以及在家庭沟通与问题解决、赋予逆境的能力、持有积极看法3个项目的得分显著低于对照组(P<0.05)。2)试验组的家长性别、主要居住地、患儿主要抚养人以及畸形严重程度4个项目与家庭抗逆力总体水平具有显著关系(P<0.05)。结论 唇腭裂患者家庭抗逆力水平较低,其中家长性别、主要居住地、患儿主要抚养人以及畸形严重程度是主要影响因素。男性家长的抗逆力总分显著低于女性家长,父母双方共同抚养患儿的家庭抗逆力水平较高,居住在城市的家庭抗逆力得分显著高于乡镇及农村,且农村家庭得分最低。

关键词: 唇腭裂, 唇腭裂家庭, 家庭抗逆力

Abstract:

Objective This study aims to provide a new perspective and basis for psychological support for families of children with cleft lip and palate (CLP) by examining the family resilience level and demographic factors that affect family resilience. Methods A total of 113 parents of children with cleft lip and palate were selected as the experimental group from West China Stomatology Hospital. A total of 160 parents of non-CLP children were selected from a school in Chengdu as the control group. A self-made questionnaire was used to assess the basic information of subjects. Family resilience scale was conducted to assess the scores of family resilience and all dimensions. Results 1) The experimental group had a significantly lower score than the control group (P<0.05) in the total score of family resilience, family communication and problem solving, and ability to find meaning in adversity and maintain a positive outlook. 2) In the cleft lip and palate group, there were significant differences between the total score (the overall level of family resistance) and the parents’ gender, main place of residence, primary caregiver, and the severity of illness (P<0.05).Conclusion The level of resilience of families with CLP children is lower than that of families with non-CLP children. The total score of family resilience of father is lower than that of the mother. Families in which the parents are the primary caregivers showed higher family resilience. Families living in cities have higher total score of family resilience than families living in towns, and families living in villages had the lowest resilience.

Key words: cleft lip and palate, family with cleft lip and palate children, family resilience

中图分类号: 

  • R782.2

表 1

试验组与对照组FARS-C得分比较"

变量 试验组 对照组 t P
总分 158.41±11.81 165.78±18.78 26.18 0.000
家庭灵性 2.08±0.58 2.07±0.62 0.812 0.879
利用社会和经济资源 2.80±0.41 2.83±0.43 0.378 0.592
家庭联结 2.83±0.34 2.80±0.32 0.657 0.373
家庭沟通与问题解决 3.04±0.27 3.14±0.41 29.440 0.039
赋予逆境的能力 3.24±0.74 3.41±0.47 0.319 0.027
持有积极看法 3.12±0.37 3.32±0.46 16.471 0.000

表 2

试验组影响家庭抗逆力的流行病学因素"

项目 分类 n 得分 t F P
家长性别 33 153.41±11.07 2.71 - 0.007
74 160.61±13.34
宗教信仰 20 162.65±14.41 1.71 - 0.040
87 157.65±11.08
主要居住地 农村 56 156.87±11.32 - 12.690 0.037
乡镇 26 157.50±9.97
城市 25 162.72±13.87
主要抚养人 父母双方 46 159.15±5.66 - 12.390 0.020
父/母一方 17 158.39±12.08
(外)祖父/(外)祖母 44 156.94±12.08
畸形严重程度 唇裂 6 159.38±11.56 - 17.113 0.001
腭裂 5 150.47±4.68
CLP 96 149.33±12.40
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